Please click below for an interactive calendar showing all PRO Support Groups which include meetings for Persons with Parkinson’s, caregivers, family members, and Professionals servicing the Parkinson’s Community. We hope to see you soon…
Resource for information and assistance to patients with Parkinson's disease, their families and caregivers
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My husband and I have been dealing with his PD for about 4 years and until recently he was fine(all symptoms controlled by medications). He has been resistant to go to support groups but I feel very isolated and overwhelmed as his symptoms have gotten much worse and medications seemed to intensify the problems. Is I okay to go to groups alone?
Going to a support group alone is Ok. You may find great benefits in finding a “Caregiver Only” group. The biggest advantage of participating in a support group is helping you realize you are not alone — that there are other people who have the same problems. This is generally a huge relief.
Participating in a support group can also help you develop new skills to relate to others. Bur remember that a support group is like most other meetings, there is a give and take, giving and receiving. Other members of the group who have the same or similar problems can support you and may suggest new ways of dealing with a particular problem, as you can support them in their challenges and struggles.
Hope this was helpful, please get back to us if we can be of further service.
Hi,
I am a PD partner. Allen, my husband, is the one with PD and Dementia. We are going to be in Hollywood for a few months. We just are transplanters from MD.
Would much appreciated your assistance in finding a closer Support Group for mid morning meeting.
We are new in the area and traffic of LA is amazingly thick and discouraging. If we don’t have to add more car on the road when needed by other riders…
Thank you.
Bounheng
Good luck and enjoy your stay in Hollywood. There are quite a few support groups in the Los Angeles, West Los Angeles areas; however, you may find that many of them (as ours) are closed for the summer. We will send you a list that you can check out to see 1) if they are available during the summer and 2) if they find your geographic desires as well as your time schedule.
Hope you found this helpful. Please feel free to get in touch with us by phone 877-775-4111 if there are issues or concerns we can answer until you find a group.
Hello! I could have sworn I’ve been to your blog before but
after browsing through a few of the articles I realized
it’s new to me. Nonetheless, I’m definitely happy I came across it and I’ll be bookmarking it and checking back frequently!
Let us know where we might be of more assistance. Thanks for joining us.
Am searching for help in the Ft. Pierce, Florida area. Please help if you can.
Thank you for being in touch, Helene,
What type of help are you looking for? Please write or call and let us know what we might be able to do.
Hi!
We were very happy to see this new website! We live in Lake Gregory, CA 92325
We were hoping we might be able to join a support group near to us. I know there is a Support Group in Palm Desert, which is about an hour and a half away. It’s always nice to know that you aren’t the only ones living with PD. Everyone seems to have different symptoms & difficulties & we know that’s very normal. We want to educate ourselves as much as we possibly can with Living with PD. One question we have to ask is: Does anyone else suffer from toes cramping? It’s nice to be able to find a Blog like this! Thank You!
We’ve been able to determine where you are located and did some checking for support groups in your area, perhaps the closest is at Loma Linda 909-558-2128. You might also ask at your local hospital. If you cannot find one close enough, perhaps consider starting one.
Support groups are groups of people sharing a common disorder, and who meet to discuss their experiences, share ideas, and provide emotional support for one another. Not brain surgery, but super important. Self-help support groups are usually not led by a professional therapist, social worker, psychologist, nurse, or psychiatrist; notwithstanding, they can be a helpful coping tool.
Regarding your question: Does anyone else suffer from toes cramping? This often referred to as Dystonia, and the answer is YES. People with Parkinson’s may experience muscle cramps and dystonia in their feet. This is where, involuntarily, one of the muscles or a group of muscles tighten or shorten. Sometimes this causes the toes to curl in. Sometimes the ankle can turn in as well putting pressure on the outside of the foot. Feet are so important in ambulation, balance etc., that these issues should and can be addressed with your different physicians. In some cases, dystonia can be connected to your Parkinson’s medication – speak to your medical provider to see if changing your dosage helps. A podiatrist may also advise you on suitable treatments for toe-curling. If the Achilles tendon at the back of the heal is affected Dystonia can cause it to tighten up and pull the foot into a downward position. We find many people with this issue walking on their toes. Some of our constituents are finding tremendous benefits through the use of Cannabidiol (CBD). We’re working closely with a couple of organizations to bring the best information possible out to the public in the near future.
Hope this was helpful.
Greetings-
I am a PWP (Young Onset) and recently moved from Denver to Solvang, CA. Once there I found that there were no support groups closer to us than Santa Barbara, so I started one!
The Santa Ynez Valley PD Support Group meets the second Tuesday of each month at 4:30 at St. Mark’s In-the-Valley Church in Los Olivos. Please feel free to have anyone wanting support, contact, or assistance to contact me at SYVPDGroup@gmail.com or call 303-909-3862. We have about 65 people in our group and are growing. We are working on our event schedule for 2015, but know that each meeting has a discussion topic. We are also putting together “sub-groups” including a men’s group, a caregiver’s group, a young-onset group and even a social group!
Please help us get the word out that we are here and active –
Best-
JILL ATER
All best wishes and let us know if there is anything we can do to assist
I am newly diagnosed with Parkinsons Disease and live in Miami, Florida. Can you recommend support groups for persons with Parkinson Disease and their spouses in the Palmetto Bay, FL 33157 area or Miami, FL proper.
Sincerely,
Debbie Sagan
Can you recommend any support groups for patients and care givers in the Sterling Heights, MI area or near zip code 48313?
Sincerely,
Lorena Ferrari Meza
Hi. I was wondering if you can find any information about support groups in Sterling Heights, MI. My father has Parkinson’s and we need some support and activity groups.
Thank you,
Evan
Hi Evan,
The closest Parkinson’s Support Group we could find which is open to any person with Parkinson’s Disease, their family members, or caregivers, is held on the first Thursday of every month from 2:30 to 4 p.m. (no meetings in January or July) at St. John Macomb Oakland Hospital – Warren Campus, Medical Education Building, 12000 E. 12 Mile Road, Warren, MI 48093. Call Stacey Turner at 586-573-5123 for more information.
We hope this is a good start to your discovering what the Parkinson’s world is really all about and what you can do to create as much “quality of life” as possible for your father. Let us know if we can be of further assistance.
We sincerely hope you already found a support group in or near Sterling Heights. We just wrote the following to someone else from Sterling heights:
The closest Parkinson’s Support Group we could find which is open to any person with Parkinson’s Disease, their family members, or caregivers, is held on the first Thursday of every month from 2:30 to 4 p.m. (no meetings in January or July) at St. John Macomb Oakland Hospital – Warren Campus, Medical Education Building, 12000 E. 12 Mile Road, Warren, MI 48093. Call Stacey Turner at 586-573-5123 for more information.
Hope this is helpful.
Hello,
Thank you for all you are doing for PWP and especially getting the word out regarding the TMJD connection. I have had an appliance for about 3 weeks now. The changes are very subtle. I am interested in hearing from others who have undergone the same treatment or those who are further along in the treatment than I. I have been unable to find any information on your blog/forums. The web site has changed recently, so I am hopeful that this is still under construction and will be more user friendly in the future. Thanks so much.
Thea
Thank you for your communication Thea. We are so happy you have found us! Yes, the PRO website is brand new with lots of opportunity to grow a helpful, supportive community. We encourage you to continue to post your questions and comments, and we will share as much as we possibly can. Stay in touch, become a member IT’S FREE! and let us hear about your progress as often as you can. With members like you we can move mountains and help those that truly feel hopeless and helpless.