Parkinson’s Resource Organization is dedicated to improving quality of life for families and individuals affected by Parkinson’s disease through education, support, and practical resources. Click here to get in touch and stay in touch for news, updates, and more.
Our History:
Parkinson's Resource Organization (PRO) was established in 1990 by caregivers who were overwhelmed and struggling to find the support network they needed. So they decided to create one. What started as Children of Parkinson's morphed into Parkinson's Resource Organization and today we continue to maximize quality of life for people with Parkinson's, their families, and caregivers through education, resources, and person-to-person support.
PRO works to improve quality of life for everyone impacted by Parkinson’s. We do this through emotional and practical resources, support groups, educational materials, and access to a network of professionals who can provide guidance and assistance. Additionally, we advocate for the needs and rights of caregivers and patients, ensuring they receive the necessary care and resources.
Caregivers play a crucial role in the management and support of Parkinson's patients. PRO acknowledges their efforts and aims to equip them with the tools and knowledge required to provide effective care. Through continuous outreach and dedicated services, we strives to create a supportive community where caregivers and patients can find the help and companionship they need.
What We Do
To address the acute needs of the Parkinson’s community – namely caregiver support and resource pooling – we built several core programs:
Support Groups – Through dedicated in-person support groups for caregivers and people with Parkinson's, we distribute new information quickly and build a community network that teaches and learns from itself.
Wellness Village Resource Directory – The Wellness Village is a free, virtual, vetted, digital resource directory of the best available providers and services within the Parkinson’s world, designed to ease the research burden and introduce constituents to a wide range of holistic and practical support services to navigate Parkinson’s and maximize quality of life.
Information & Education – Through our long-running newsletter, YouTube channel, and social channels, we educate audiences across the country – and the world – on the latest Parkinson’s news, tried and true lifestyle tips, research, and more. Open forums like our Village Meetings feature researchers, physical therapists, elder law attorneys, and more.
Memorial Wall – A virtual place to hold the memory of someone who lived with Parkinson’s or Parkinsonisms…and their family members, caregivers, and friends who were touched by Parkinson’s. A virtual place where family and friends can grieve and heal, gain solace and understanding, and virtually ‘visit’ their loved one. A virtual means of announcing the passing to a greater number of people than can otherwise be accomplished through a tangible publication.
As caregivers, people with Parkinson’s, and friends of the community, we know how isolating and all-consuming Parkinson’s can become. We hope the advent of a cure for this hideous disease will soon make our mission obsolete. Until then, our goal remains what it’s always been: working so no one is isolated because of Parkinson’s Disease.
Who We Serve
People with Parkinson’s – available resources for people with Parkinson’s or Parkinsonisms include dedicated emotional support groups, information and education, one-on-one coaching, and more.
Caregivers & Family – available resources for people caring for, living with, or otherwise supporting a person with Parkinson’s or Parkinsonisms include dedicated emotional support groups, information & education, one-on-one coaching, the Memorial Wall, and more
Service Providers – available resources for service providers and business partners include our Wellness Village Resource Directory, newsletter participation opportunities, event sponsorships, and more.
Contact Us
Toll Free (877) 775-4111
