MESSAGE FROM THE PRESIDENT SEPTEMBER 2018 · Parkinson's Resource Organization


Category: Message From The President


Politics aside, we express our deepest sympathy to and prayers for the family of John McCain. He fought a tough battle and put up a good fight. It’s the sort of fight that people with Parkinson’s put up with every day.

We also pray that the horrific weather systems that have been with us for the past couple of months to subside soon.

The PRO office accomplished so much this summer. We launched the new website on July 1. It has increased our Search Engine Optimization a thousandfold. I thank Sky Lundy (the web designer), Jeremy Simon and all of our wonderful volunteers who worked diligently to accomplish this major fete. We established a PR campaign to promote the support groups by informing vendors, professionals, and the press in each of the group locations of the meetings. We sent Flyers throughout Southern California. Our last major task, scheduled to be completed this month, is building the new database in SalesForce and transitioning the information from the old database. A major undertaking, that we thank our Jeremy Simon, along with Adan Olivas for their strengths, and our SalesForce support team out of Canada, Chris Thomas, Gobi, and Brittany.

We added two staff members, Terry Stralser as my assistant, and Brenda Wallace, Director of Development. Watch us continue our growth, only a bit more smoothly.

The Wellness Village grew and renewed substantially. Watch for Emails as well as for the additions on Page 2 of the newsletter.

September brings with it the re-opening of our support group meetings. We look forward to meeting and greeting each of you and finding out what was good and what was not so good for you during the summer.

PROvocative and engaging articles are throughout this month’s Noteworthy Notes. The ICBI UPDATE ON THE ROAD TO THE CURE discusses their stake in history, on this page. MICHAEL LU (29 YEARS OLD WITH PD), JOINS OUR BOARD. ; Dr. Greg Collins, Ph.D., Pharm D addresses FOUR COMMON ILLNESSES THAT FALL BRINGS, what Cornerstone & other pharmacies can offer to help. We refer many members to Elder Law attorneys for getting their Medicaid or Medi-Cal applications completed correctly, it seemed beneficial to our readers to bring: SELECTING AN ATTORNEY FOR MEDICAID or MEDI-CAL PLANNING By William R. Remery. Lucy Sanchez Wiseman, M.S. CCC-SLP addresses the question HAVING DIFFICULTY WITH SWALLOWING FOOD OR LIQUIDS?, and LOOK AT ROSES FOR ROSEN.

Join us in making a difference in your life or the life of a loved one this MONTH by donating. Without YOU, we could never do all that we do. Supporting us is simple: Make monthly donations through our safe PayPal donation page at or mail your donation to our office in Palm Desert, CA.

Until next month, REMEMBER on Labor Day the 3rd, International Day of Charity on the 5th, Rosh Hashana starts on the 9th, Patriot Day is on the 11th Yom Kippur starts on the 19th, Fall begins on the 22nd and my birthday is the 26th. The flowers are the Aster & Forget-me-not, and your Birthstone is Sapphire. ALWAYS remember to CELEBRATE YOU and PRAY FOR OUR TROOPS!


Jo Rosen

Founder & President


Parkinson’s Resource Organization’s

Newsworthy Notes

September 2018, Issue No. 310

Published Monthly

Parkinson’s Resource Organization

74­478 Highway 111, No. 102

Palm Desert, CA 92260­4112



Board of Directors:

Governing Board:

Jo Rosen, President, and Founder

William R. Remery, Esq., Elder Law


Michael Rudder, Director at Large

Michael Lu, Director at Large

Kaya Kouvonen


Advisory Board:

Jacob Chodakiewitz, MD

Patricia Dunay

David Swope, M.D.

Dr. Ana Lorenz

Claude Valenti, OD, FCOVD,

Dana Bernstein, Advertising Director

Sue DuBrin


Honorary Board Member:

Greg A. Gerhardt, Ph.D.

Michel Lévesque, M.D.

Stephen Macht, Actor/Director

Trini Lopez, International Singer-Songwriter



Maria Elias

Debbie Stein

Roger Rignack MBA


Gone, but not forgotten:

Alan Rosen, FAIA

Elina Ostern

Jerry Bernstein

Jack Hiss, MD

Phil Gustlin, Esq

Dr. S. Jerome Tamkin

Kenneth Slade

Shirley Kreiman


Founding Members:

Jo Rosen, Founder

Arnie Kronenberger (deceased)

Catherine Buckingham

Jennifer Reinke

Darlene Fogel

Chuck Koch

Alan Rosen, FAIA (deceased)

Wayne Friedlander

Paul Rosen

Elaine Vacca

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Contact Us

Parkinson's Resource Organization
74785 Highway 111
Suite 208
Indian Wells, CA 92210

Local Phone
(760) 773-5628

Toll-Free Phone
(877) 775-4111

General Information


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Updated: August 16, 2017