Testimonials · Parkinson's Resource Organization


Testimonials & Appreciation

The following comments, letters of appreciation and e-mails of support are shared with the single purpose of expressing our gratitude and love from our many constituents and the Parkinson’s Community at large. We cannot thank you enough for your time and support and wish each and every one of you Gods speed, Joy and a heart filled with love.


Dear PRO Team, 
     I want you to know how much my husband and I appreciate your concern, your good advice and your many helpful referrals as we struggled with his recent healthcare emergency.
    You have been the only ones we could turn to when it comes to specific advice for Parkinson’s patients.
    We are so grateful that you are here.


This testimonial was posted on Issue 340 of "Newsworthy Notes", the Parkinson's Resource Organization monthly newsletter.


Not sure how to reach Ms. Rosen, so I hope this can be passed along. I just attended the caregiver's meeting on zoom this evening and I wanted to say thank you. It really helped to hear other people’s situations and know that I don’t have to do this alone. The past 15 months have been life-changing as well as humbling for me. Words can’t describe how having a place to receive some support will help me be a better caregiver as well as address my health issues.  I look forward to learning more about upcoming meetings and reviewing your resources on your site.  Thank you again for what you do!  



I am so happy to hear that Nothing Bundt Cakes is sponsoring your organization!  That is terrific news!  You have been heavily involved with Parkinson’s and have been helping our community serve us (patients) well before I was diagnosed in 2002.  And, of course, you have continually helped with that elusive goal to find the cure.


-Sharon Miller, Loma Linda, CA


We spoke yesterday and I want to let you know that I found you galvanizing, knowledgeable and deeply truthful.  What a light in the world!  It was a powerful experience for me.  I am sorry I won’t hear you speak tonight at the Oasis. Among the things that I can’t shift off my plate are visitors – family are flying into town tomorrow to stay with us.  And I have much to do.  We talked some about the exciting research that is ongoing, that I read more about on your website.  I wish we could be of help in some way — but I don’t think we can.  We’ve needed to simplify over the past year or two, and have let go of some things that we’d like to do. Charles and I both work full-time and with our commitment to an anti-PK lifestyle on top of that, it’s all we can do to keep life running on a smooth track. But regardless, I’ve found you.  And look forward to meeting you in person.

-Mary, Newport Beach, California


The Parkinsons Resource Organization in its spirit of cooperation and unselfish commitment to assisting other Parkinson’s Disease non profits stepped up and assisted us in promoting a Parkinson’s themed cruise. In response to their direct marketing, a couple from the California area participated in our cruise to Alaska.

-Michael C., Naples, Florida


I have known Jo Rosen since the late 90’s. We became very good friends when she agreed to hold PRO meetings in her first nursing home in Glendora, California.
At the time I was the director of Speech Therapy in the Rehab. Department in the nursing home. We continued our friendship and I continue to support PRO with donations. When time permits we visit with each other.
Jo Rosen and PRO is the best nonprofit organization for people with Parkinson’s disease and their caregivers.

-Carole, Merritt Island, Florida


Parkinsons Resource Organization (PRO) is a small nonprofit with a huge heart and a huge mission. As a caregiver for my husband, who battled Parkinsons from a relatively young age, and now as a CNA in a skilled nursing facility, I have found that PRO is a resource I turn to for information, for support, and for inspiration.The newsletter is simply outstanding with articles that are both helpful on a day-to-day basis and are keeping us up-to-date on advancements in treatments. I really appreciate that the contributors to the newsletter come from various disciplines, including medical, financial, dental, and from caregivers themselves so that I get a well-rounded view of what’s going on in the world of Parkinsons.
I would highly recommend PRO to anyone dealing with Parkinsons in any capacity. This is an organization that will go out of its way to meet your needs.

– ABJMom


When we discovered that my mother had Parkinson’s, Parkinson’s Resource Organization (PRO) was an absolute Godsend! I knew nothing about the disease, and they were there to help me, every step of the way. If I had a question or needed a referral, Jo Rosen or one of her associates answered my call or email immediately. Everyone who works at PRO shows compassion, empathy, and is always full of knowledge. No question or problem is too small, and I’ve always known how important my mother and all of us are to everyone working at this wonder organization. Thank you, Jo Rosen, for your continued love and support for all those who suffer with Parkinson’s and their caregivers. You and PRO are appreciated more than you will ever know.

-Lisa Martin, PhD, Colorado


I have a wife who has had PD for about 10 years. Over a year ago I discovered PRO and Realizing I needed some help and an opportunity to vent because I was getting overwhelmed by it all. I searched the web for a PD organization that held Caregiver meetings. PRO had a Caregiver only meeting and I attended. As I sat in the meeting and listened to the Host and caregivers and asked questions, I was just besides myself with excitement about finally finding an organization that had exactly what I needed. Have been attending ever since and I am still excited about the meeting where we can talk about any area of PD or the Caregiver’s stress and get good information and insight from one another or PRO’s president Jo Rosen by phone. An example of this is when I talked to Jo about my wife’s doctor changing and increasing her medication which troubled me. She suggested a second opinion and provided the name of a doctor in my area. Since that time we have been seeing another doctor that established a plan to reduce her current medications and my wife seems to be getting back a lot of her old personality and the dementia, that really concerned me, has diminished some. All because of the support of PRO. Thanks PRO.

-Bob M., Yucaipa, CA


Love Parkinson’s Resource Organization, Jo Rosen is a wonderful dedicated lady,
A great resource of information, very approachable….has the answers to all the questions!! She has set up so many support groups for people with Parkinson’s &

-Anonymous Client Served


With Parkinsons Disease, there is a lot of noise but little of substance for the person with PD. Parkinson Resource Organization is that voice for those affected by PD. Questions are asked and answered, information is put out that is timely and relevant. Our concerns are heard and addressed with honesty and compassion. Jo Rosen always has something or someone available with pertinent information. The Wellness Village is a wealth of information and/or services. We learn so much from Jo, her staff and her willing cadre of caring resource people!

-Bud, Whitewater, CA


This Non-Profit for Parkinson’s, Has the best resources you can have in the Wellness Village and sees to be growing everyday. The support groups are so informative that you cannot help but to be helped. Jo Rosen is amazing and you can feel the love and warmth she has for all the people that are helped through PRO. Seriously, if you or a loved one has Parkinson’s and needs a resource in any area, be it balance training, or just a hug. This is the place.

Kathleen S., Palm Springs, CA


Sadly I have several friends suffering with Parkinson’s Disease. The husband of one woman was exhausted mentally, physically and emotionally and I couldn’t help them. In desperation I reached out to PRO and they were not only caring and compassionate, but gave me the ideas that this couple needed to get their lives back on track. Thank You PRO !



This Non-Profit for Parkinson’s, Has the best resources you can have in the Wellness Village and sees to be growing everyday. The support groups are so informative that you cannot help but to be helped. Jo Rosen is amazing and you can feel the love and warmth she has for all the people that are helped through PRO. Seriously, if you or a loved one has Parkinson’s and needs a resource in any area, be it balance training, or just a hug. This is the place.

I have known Jo Rosen and The Parkinson’s Resource Organization for more than 20 years. I first met Jo in Los Angeles ,when my father was diagnosed with a form of Parkinson’s.
I must say ,that I don’t know what I would have done, if I hadn’t met Jo. She gave us all the comfort we needed, when you have been given what we thought was a life sentence.
Instead ,Jo gave us hope and resources beyond our imagination. We had a reason to live life to the fullest!
We found that not only was she dedicated to the Organization itself, but to each and every person afflicted with Parkinson’. She became that Angel that you pray for! Our gratitude is immeasurable.

-Linda S., Rancho Mirage, CA


I got Parkinsons about eight years ago. The genetic link I know is weak but not in my case. My father, uncle, two blood aunts, and a great grandfather with the “shakes”. But I have fought as hard as possible against it. I saw my father collapse quickly from it and vowed to myself that I would do all I could to put off its effects. I was a marathoner up until two years ago. I had to stop due to an unrelated problem. But I rode my bike 4,300 miles across the country four years ago. And I continue to log thousands of miles a year, quite a bit of which are gruesome hills and mountains. And I have been taking Kung Fu lessons for the past three years and Tai Chi as well. I highly recommend either cycling, Tai Chi or yoga as they strengthen the balance system. Please fight with all you have and you will hold off the effects and improve your strength and feelings of self worth.

-Ric Hart, Kuala La


Jo Rosen, founder and President of Parkinson’s Resource Organization is nothing short of a POWERFUL Freight Train! She never stops giving to her Parkinson’s community and continues to connect patients with vital information, consultation, guidance and encouragement 24/7 Her organization is unique in that they are NOT subsidized by BIG BUSINESS, they are sustained by the donations and gratitude of her clients and followers. I have heard many times of people coming to her in shambles, recently diagnosed with Parkinson’s, devastated by the news and having NO IDEA where to turn. What’s next, what’s best, how do I move forward with my life?
The Parkinson’s Resource Organization team is small and yet they answer every call and every email personally. Jo reviews every piece of communication to insure her clients get the absolute best information and support. PRO plays a vital role in the world of Parkinson’s disease. With a kind heart, commitment to serving others and a heart dedicated to those on the Parkinson’s journey, I can’t think of another organization more deserving of recognition.

-Lynn H, Indian Wells, CA


I have two stories :: One, my neighbor went to Jo Rosen’s meetings a few times after her husband died and sure enough, she met a man who was mourning his wife and about two years later, the two of them fell in love and married! They are living happily ever after!!

Two: My mother, who had Parkinsons, loved music and had played the piano all her life. Now living with us, we looked for a piano teacher who was skilled in helping her play despite her tremors and her dementia. I called PRO and Jo Rosen put us in touch with a wonderful teacher, Susanne Shapiro, who taught my mother and had the patience of a saint! It was a godsend to have Ms. Shapiro help her lift her spirits and practice with her (and, it turned out very coincidentally, more than 40 years before, they had met at a mutual friend’s dinner party in New York – 3000 miles east of where they now lived in Los Angeles)!!! Jo also recommended a terrific masseuse for my mother and she came every week to massage my mother’s body with hopes of keeping it supple and flexible. My family cannot thank Jo Rosen enough for all both the physical and the spiritual help that she provided for my mother when she had Parkinsons, dementia and lived with us for almost seven years.
Trying to give back, my husband was able to host several PRO functions in those years – which were always not only fun but very fulfilling. This organization – and Jo Rosen – deserve many kudos for the wonderful, important work they’ve been doing all these years….

–Suzanne M., Beverly Hills, CA


I just read the very informative article on Hospice Care myths with great interest. I recently put my mom on Hospice Care, not because she is dying but because I did not want her to be rushed to the hospital from her assisted living facility unless it was really necessary, and Hospice can prevent this.

When Hospice was first suggested to me I recoiled at the idea as many people do. But then I learned more about it & decided it was a good thing. Another benefit is that Hospice (via Medicare) delivers and pays for supplies (diapers, wipes, gloves, etc.) and this can be very helpful.

My mom has been losing more of her physical & cognitive abilities the last few months since she had a short (& unnecessary in my opinion) hospital stay in January after a few falls (she was not hurt). I am planning on moving her to a board & care facility closer to where we live so I can visit her easier & more often & I think she will get better care there. Hopefully this will happen soon. She will be 94 in April.

I’m glad you are informing people about Hospice. As I am learning, it is a wide-spread business, as is caregiving, board & care & assisted living. As more of us live longer we need more services & it seems there is money to be made.
Hope you are doing well, thanks for all your good work!
- Barbara M


My father faced this disease with dignity and courage. May those of us left behind continue to find answers to light the way for others on the Parkinson’s path.
In loving memory of my father, Herbert M Newman (4-6-2006)
Jeanette V, Davis, CA


Your websites are great resources and are so well done! I work with patients all over Southern California and Las Vegas
Thank you for your dedication and excellence.
Southern Cal


Dearest Jo-

I like the new look of the PRO Newsletter.  Very updated and easy to navigate.  You look great in your video. Nice to hear the voice I know.I am ok. I do not have any work at this time and am working with over 14 recruiters to find the right job for me. I do need to  continue working. Meanwhile I am keeping busy with friends and family.  My week-ends are busy also which I like. No travel plans this year with my focus on my goals.
Be well and continue to great work that you have been doing for so many years now. You are a special person and happy you are in my life.
Love and hugs,
Rockledge, FL


Hi Jo,

Had a very bad year with Joe but think we have him on the mend now.  It was all due to the meds they were giving him.  Almost lost him a couple times but changing Dr’s helped.  Now he is getting some teeth fixed and if that helps his stomach with digesting his food we will be there sometime this month.  When we get there I’ll phone you.
Thanks again for your concern and all you did last year. I read all your news letters and keep up your good work.  Really admire you!
As Always,
Slave Lake, Canada



I am so glad that Marines and Sailors were able to get off the base and come to your home for Christmas.  I clicked on the link that you sent me and I watched the news broadcast, not going to lie it did bring tears to my eyes.  Knowing that I was there last year and you welcomed me into your home, I greatly appreciate all that you do for our service members.  I will keep you posted on when I will be coming to the area for a visit, hopefully very soon.  You are so awesome, thank you so much from the bottom of my heart.

Very Respectfully,
Steve Delsie
United States Navy (retired)


Good Morning Jo!

I think of you often…….YOU are so courageous in your mission to help those suffering with Parkinson’s!!  Personally, I am acutely aware of your two most important people in your life, loss’s due to this tragic illness! You have “soldiered on” against the odds to keep your Foundation alive and out there for so many that seek the information that only YOU provide.
It is HUGE all that you do, Jo……..and I always feel so proud to call you friend!!

God Bless you!!
Laura Palmer (Midway, UT)



I’m very impressed with your new website, I’m very sorry that I do not have enough words to express my admiration for your accomplishment this is wonderful.  Love you and admire you. I wish I can get some of all your energy I not sure why I still too stock on sadness and poor motivation. THANK YOU VERY MUCH Nilda. (Van Nuys, CA)

Sounds like the seminar was a terrific event. I was very taken with Cheryl’s report.
Pat – Sherman Oaks, CA


Terrific issue! Glad we were able to participate!
Best regards,
Ron Fatoullah – New York



“It is I who should thank you. I have visited The Parkinson’s Resource Organization Website while writing segments for the American Health Journal. It is a valuable resource. Likewise if I can assist you or your organization it would be my honor”

Rick Campbell, Writer, Reporter, Palm Springs


Dear Jo-

I wish you rest, in your summer sabbatical. You are doing so much for Parkinson’s -I was moved (at the Parkinson’s Recovery Summit) beyond what I can say, by your passionate devotion to this cause-so near and dear to my own heart.
Thank you so much more than I can say Jo–let me know if I can be of any assistance to you,

Deeply moved, Nansy & Rabbit
Winchester, VA


Dear Jo,

Just wanted to express my gratitude for all the work you are doing for people like me with Parkinson’s disease……. This website has given me hope. 

Yours sincerely,  Carla G.


Dear Jo. Thanks for your love and support to so many! In the Newsworthy News Notes there is always an inspirational story or thought to help us all stay connected as we live life together. You share and encourage all of us to share more, love more!  Thanks. Sam 


Dear Jo,
I was glad to receive the newsletter and to know that you are doing great things, as usual, for Parkinsonians.  I am doing well,  It was such a nice visit we had in Palm Desert.  I hope we can do it again.

Love, Judy R
Evanston, IL



Your vision, your dedication, your sacrifice, and your drive to try to get the whole picture is a wonderful contribution to progress for PD patients and their families!
Kathie Arnold


Hi Jo,
Thanks. I downloaded the Matrix and will fill it out this weekend. Peter gets his appliance on Monday morning. I’ll keep track of his progress. I’m so tired of going to Peter’s Neurologist. He doesn’t have anything to offer him except more of the same meds. It’s very discouraging. I think he thinks Peter is doing well since he can still walk into the doctor’s office. He doesn’t see the day to day problems and it doesn’t matter since there is nothing else he can do for him. He always asks if he wants to get DBS surgery for his left tremor. It didn’t work the first time so why would we do it again! I mentioned to him at Peter’s last appointment about the TMJ symposium and how TMJ treatment sometimes helps PD symptoms. He was naturally skeptical and wanted to know if there had been clinical trials. It’s hard to get the medical community to open their minds.
Anyway, thanks again for all that you do! I’ll keep you updated.

Elizabeth M,
Glendora, CA


Good Morning Jo,
Thank you for the notice of the internet radio show today. We will certainly be attending. Pat received his appliance on Monday! Wow! I haven’t seen the tremors change YET, however this is what I have seen. When he holds my hand, I feel my husband holding my hand. There is a manly strength back in his hands, his eyes are circular opposed to be slanted; he is focusing and responding from those beautiful blue eyes. As you know, PD patients battle constipation; he is having black watery bowel movements. To me, this is great! The body is releasing all that has been building up in the colon for quite some time. When the body isn’t full of toxins, it definitely can respond better. He’s still getting up 3-4 times at night to pee. I see this as an adjustment period, detoxifying rapidly and that this will level off. No discomfort associated with wearing his appliance. I noticed immediately how his precious face is actually in a better position, opposed to drooping. No snoring. Yes, standing more erect opposed to the bend at his shoulders and neck. Generally speaking I see Hope and Happiness in his overall attitude, what a fabulous Christmas gift for both of us. Bless your heart and diligence in getting this out to All of Us who seemed to be slipping into isolation and desperation.

With Love and
Kathy and Pat,
Newport Beach, CA


Hi Jo,
Thank you so much for organizing this great event “Ultimate Quality Of Life Symposium” and being just a superb “HOST”!!!!! We had a wonderful time and learned a great deal. Everyone we met was so nice and friendly and excited…..Jo you are making “HISTORY”!!!  It is going to take someone “SPECIAL” like you to bring this info to the public! TMJ
dentists have known this jaw/ health connection for over 70 years. And have brought it up several times but to no avail “Educators are very resistant to change”! But now
with the internet it is going to be harder for them to resist change especially if the “PUBLIC” discovers this TMJ/HEALTH CONNECTION!!!

With warmest regards,
June and Risto Hurme
San Antonio, TX



Congratulations on having a fun and educational weekend. You had a good turnout for the sessions and many people heard the exciting breakthrough in Parkinsons. I
was sitting next to an IW resident on Sunday who told me his parents were there to learn more because one or both suffered from the disease. If it weren’t for you, the weekend would never have happened. If it weren’t for you, PRO wouldn’t exist and the many families you have helped and save would not have benefited. I’d say u have more than two miracles so you are my SAINT! I’ll see what I can find out about assistance from Rotary in the desert. Be well!

Love, Bill O
Torrance, CA


I’m so happy this was such a success; you continue to do great things.

Love, Debbie S
West Los Angeles


Dear Jo,
Please add me to your e-mail list and send me your recent e-mail sent to others in attendance regarding the weekend conference. Congratulations on a wonderful well done and information packed conference. Keep up the good work.

Love, Diane B
Your grand prize winner 2004
Long Beach, CA


This is amazing! We are going to contact Dr. Lisk for my mother. Thank you so much!!!!
Donna T,
Sherman Oaks, CA


Dear Sir / Madam,
I am enquiring with regards to the ‘Ultimate Quality of Life’ Symposium offered breakthrough information to persons with Parkinson’s and others’ course held recently.
We would like to purchase a DVD or course notes if at all possible.

Doctor DH, BDS
London, United Kingdom


I love the testimonials on website. I am a TMJ dentist wanting to know is there a video of the last conference available. THANKS I am very interested.
Doctor LP, DDS
Independence, MO


I am interested in learning about the treatment protocol for Parkinson’s patients.
Doctor RG, BSc DDS
Ontario, Canada


I am a support group facilitator in Lincoln, CA.  You have good info on your newsletter that I will use to pass along to my people.  I do not have Parkinson’s.  I have around 40-60 persons in my group.
Brenda C.
Support Group Facilitator
Lincoln, CA


Dear Jo

Thank you so much for last night. Wow, there’s so much to learn about all things PD, and I know we’re in the right place to do so. I can already sense your passion to help PD patients and their caregivers and families as they wade through the effects of the disease, and your knowledge and experience are extraordinary. But I also see your love for each person, and your heart + your knowledge are the perfect match. Thank you ahead of time for being there for us! I look forward to what we can learn about our PD journey alongside caring and knowledgeable people like you. 


Happy birthday to you! (You look great!)



A Very Merry Christmas to you and to all your colleagues at PRO.  You’ve been doing a wonderful, dedicated job of supporting families of Parkinsons patients and it continues to be so appreciated by both Stephen and me.

Wishing you a Happy and Very Healthy New Year to you!



Contact Us

Parkinson's Resource Organization
74785 Highway 111
Suite 208
Indian Wells, CA 92210

Local Phone
(760) 773-5628

Toll-Free Phone
(877) 775-4111

General Information


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Updated: August 16, 2017