For Caregivers and Families · Parkinson's Resource Organization

A Caregiver's Bill of Rights



I have the right:

  1. To take care of myself.  This is not an act of selfishness; it will give me the capacity of taking better care of my relative.
  1. To seek help from others even though my relative may object because I recognize the limits of my own endurance and strength.
  1. To maintain facets of my own life that do not include the person I care for, just as I would if they were healthy.  I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.
  1. To get angry, be depressed and express other difficult feelings occasionally.
  1. To reject any attempt by my relative (either conscious or unconscious) to manipulate me through guilt, anger or depression.
  1. To receive consideration, affection, forgiveness and acceptance for what I do from my loved ones as long as I offer these qualities in return.
  1. To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my relative.
  1. To protect my individuality and my right to make a life for myself that will sustain me in the time when my relative no longer needs my full-time help.
  1. To expect and demand that as new strides are being made in finding resources to aid physically and mentally impaired older persons in our country, similar strides will be made towards aiding and supporting caregivers.

Add your own statements of rights to this list; read the list to yourself everyday; share your additions with others who maintain a caregiver's Bill of Rights; and remember that you can learn to be an informed and better caregiver.


Contact Us

Parkinson's Resource Organization
74785 Highway 111
Suite 208
Indian Wells, CA 92210

Local Phone
(760) 773-5628

Toll-Free Phone
(877) 775-4111

General Information


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Updated: August 16, 2017